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Research Associate/Assistant: Patient Preference

Requisition ID:  11581

Newcastle, GB

Contract Type:  Fixed Term
Working Pattern:  Full Time
Posted Date:  13-Sep-2021


We are a world class research-intensive university. We deliver teaching and learning of the highest quality. We play a leading role in economic, social and cultural development of the North East of England. Attracting and retaining high-calibre people is fundamental to our continued success.



Research Assistant: £28,756 - £29,614 per annum

Research Associate: £30,406 - £33,309 per annum


Closing Date: 27 September 2021



The Role


We are looking for a talented and motivated individual to join an international, multidisciplinary team working in the area of translational research for neuromuscular diseases.


You will work on two patient preference studies in the rare neuromuscular disorders Duchenne Muscular Dystrophy (DMD) and Facioscapulohumeral muscular dystrophy (FSHD). The DMD Patient Preference Study will consider patient perceptions of participating in gene therapy clinical trials. The FSHD Europe Patient Survey will investigate what patients want from future clinical trials. The studies will leverage a network of patient organisations and registries to collect data, and link closely with partners from industry, academia, regulators and HTA bodies.


This post would suit an individual with experience in clinical research, patient registries or the drug development life cycle. Excellent communication skills with a flexible independent approach and ability to work as part of an international multi-disciplinary team will be essential and a background in preference research would be beneficial.


The John Walton Muscular Dystrophy Research Centre (JWMDRC) is based in the Translational and Clinical Research Institute and has a strong interest in research, diagnosis and management of neuromuscular genetic diseases. We have secured funding to carry out two patient preference studies in the rare neuromuscular disorders Duchenne Muscular Dystrophy (DMD) and Facioscapulohumeral muscular dystrophy (FSHD), and we are looking for a Research Associate or Assistant to lead these studies. 


Additional Information: 


This post is fixed term for 18 months.


Informal enquiries may be made to Emma Heslop (Emma.Heslop@ncl.ac.uk

Key Accountabilities


•    Working under the Principal Investigators, take responsibility for delivering the two research studies described above
•    Design and carry out a large-scale survey of FSHD patients across Europe to find out what they want from a clinical trial and what would encourage them to participate
•    Collaborate with patient organisations Duchenne UK and Parent Project Muscular Dystrophy, and research infrastructure RTI to deliver a 3-part study into DMD gene therapy patient preferences.
•    Lead on drafting and submitting peer-reviewed publications related to the research and contribute to publications within the John Walton Muscular Dystrophy Research Centre as a whole. 
•    Liaise with the JWMDRC Registries Team and patient preference experts and lead on the generation of reports including analysing data
•    Integrate data gathered from a critical review of the existing preference data from other sources and publications
•    Take responsibility for the communication and dissemination activities related to the research
•    Compile results for grant applications and presentations at scientific conferences
•    Communicate with industry, academia, health professionals, patients and patient organisations as required
•    Coordinate and participate in Steering Committee meetings and act as the main point of contact for the studies within Newcastle University

The Person (Essential)


Knowledge, Skills and Experience 


•    Develop and implement research methods in line with clinical research guidelines
•    Analyse and interpret complex data and communicate the results effectively 
•    Strong critical thinking and problem-solving
•    Technical and analytical interpretation of scientific data
•    Protocol development and implementation in a clinical research environment
•    Liaising with colleagues within an international setting
•    Scientific writing and analytical skills
•    High level organisational, communication and analytical skills (e.g. academic publications, writing for a lay audience, conference presentations)
•    Carrying out research within agreed timelines, meeting project milestones and producing research to an appropriate standard

Attributes and Behaviour


•    Ability to work independently
•    Well organised, with excellent time management
•    Motivated and enthusiastic
•    Strong computing skills
•    Innovative and flexible in approach
•    Strong team-working ethos




•    Bachelor’s degree (or equivalent) in a relevant subject
•    PhD or other higher degree (e.g. MD) in a relevant subject area (for Research Associate Level only)

Newcastle University is committed to being a fully inclusive Global University which actively recruits, supports and retains colleagues from all sectors of society.  We value diversity as well as celebrate, support and thrive on the contributions of all our employees and the communities they represent.  We are proud to be an equal opportunities employer and encourage applications from everybody, regardless of race, sex, ethnicity, religion, nationality, sexual orientation, age, disability, gender identity, marital status/civil partnership, pregnancy and maternity, as well as being open to flexible working practices.


The University holds a silver Athena SWAN award in recognition of our good employment practices for the advancement of gender equality. The University also holds the HR Excellence in Research award for our work to support the career development of our researchers, and is a member of the Euraxess initiative supporting researchers in Europe.


We understand how important the full employment package is to our colleagues at Newcastle University and we are committed to providing a great range of benefits and discounts for all.  You can learn more about what is available here on our Benefits Website page.

Requisition ID: 11581